Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Friday, December 17, 2010

9 Months

Piper is now 9 months old!  This year is going so fast!!!  She is getting so big, and WOW, she is busy!  She is crawling everywhere, and she is trying so hard to stand up!

We visited the pediatrician for her 9 month check up.  She is doing very well!  She weighed 18 lbs. 13 oz., and she is 28 1/4" tall! 

We also had her 9 month ultrasound.  We received the call a few days ago that the results were good! 

I am so happy to report that all is well for Piper!  Our next appointment is in February.  We visit the eye doctor at Duke.  We were told that we will probably have to get her prescription for her first pair of eyeglasses then.  She continues to wear the eye patch every day for 2 hours.

We learned something interesting!  The eye patches were causing a lot of irritation on her cheek and around her eye.  The Dr. recommended rubbing milk of magnesia around the area before putting the patch on.  It worked!  When we remove the patch, her skin is no where near as irritated!  Yeah!

We're preparing to celebrate Piper's first Christmas!  We're very excited!  Hopefully, we'll have lots of good things to post soon!!!

Merry Christmas to all!


  1. Hello. My name is Effie and I am writting to you from Greece.My daughter, Sofia, has Aniridia and she was born on the 2nd of March 2010 :) , like yours. WE also had our scans and they were clear and her eyes are fine with no extra problems. Looking forward to reading your news next month :)x

  2. Hi, I'm 31 & have Aniridia,.....I also have a blog on here, check it out & if you have any questions don't hesitate 2 ask. I'll be glad 2 answer anything. I understand & know just about all there is 2 know about Aniridia & growing up with it.

  3. Great info about the milk of magnesia! For us other moms out there with kiddos with aniridia, that's good info. I also found that buying a different brand of patches helped our Elli's face not be so irritated. :-)

  4. My daughter was born with sporadic aniridia. We were able to rule out the likelihood of Wilm's through genetic testing. It was a huge relief. If you want more details let me know.



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