Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Tuesday, July 17, 2012

Summer 2012 Pictures

Piper got her first pair of real eyeglasses on June 1st.  They are transitions so they turn into sunglasses when she is outside.  She does really well with them!

Piper's first haircut!!!!  June 5th

At the family reunion ...  Piper was playing peek-a-boo with Aunt Terri.  She had no idea that the bow was in her hair.  It stayed in all day!!!!!!!!!!

Family reunion ...  Piper was playing the pick a duck game with Aunt Shelly and her cousin Zachary.

Family reunion ...  Piper and Emma were playing the ring toss game.  They allowed Piper and Emma to cheat a little since they were a bit smaller than the other kids.

Family reunion ....  It was a hot day, but everyone had a lot of fun!!!

 At UNC - Piper really likes the big ball drop machine in the lobby!

At the Grandfather Mountain Highland Games.  Emma, Poppa Bell, and Piper.

Busy Summer!

We have had a very busy summer so far!  It is so nice to be able to go and do things with the family!!!  We only have a few doctor appointments each month, so we have a lot of free time! 

We took a day trip to Wrightsville Beach (Wilmington, NC).  We all had a great time!  It took Piper a little while to get used to the sand, but by the end of the day, she was smiling!  Emma loved the water!!!  We had to head home in the afternoon, though, so Piper would be home for dialysis in the evening.

Mommy and the girls took a trip to Pennsylvania to visit family.  We spent 3 nights, and we all had a fantastic time.  Both of the girls were covered in dirt and sweat (a sign of a good time) by the end of each day.  We got to visit with Grandma and Aunt Shelly, and the girls got to see their cousins!!  We also went to the family reunion.  It was so nice to see all of our family.  It's been a long time!

We took a weekend trip to Grandfather Mountain in NC for the Grandfather Mountain Highland Games.  The Bell's are of Scottish descent, so it was nice to take part in this gathering.  Our family (Poppa and Nana) hosts the Bell Clan tent at the games.  Everyone was dressed for the occasion, including Emma and Piper.  We look forward to attending in future years to teach the girls about their family history.

We have also started the tests and scans required before transplant for both Piper and myself.  We have received confirmation that our blood typing is compatible.  Piper's appointments have all been going well. She has even had her dialysis time decreased from 11 1/2 hours each night to 10 hours!!!!  This was such a blessing!  If all goes as planned, we are expecting the transplant to occur around September or October. 

We are so grateful for the continued prayers and support.  We praise God for getting us through these past years, months, weeks and days. 

I'll try to post some summer pictures soon!