Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Friday, September 30, 2011

Another Step In The Right Direction

Piper has been doing well.  She has more energy, and she has been playing a lot.  She is showing some interest in walking, but she doesn't take more than 2 steps at a time.  She's getting there!

Piper has her monthly appointment with her oncologist on Tuesday.  Most patients only have to see the oncologist every 3 months when they are off of therapy, but her team wants her to still come in every month.  I am okay with this, though.  At least we don't have to go 3 times a week.

Wednesday will be a big day for Piper!  She has another trip to the OR.  She will have her hemo-dialysis catheter removed.  FINALLY!  She hasn't needed it in over a month, but they were hesitant to take it out until they were certain she wouldn't need it.  I am so excited to have that out!  It is a quick, routine procedure.  It is also Outpatient!!!!!  We will get to come home the same day.  That is awesome!  .....  and it's good because.....

Thursday morning, we have another doctor appointment.  This one is local, though.  Piper's big sister, Emma has her 3 year old physical!  Emma turned 3 yesterday!  We had a luau party on Saturday, and both of the girls had a great time!  Piper is enjoying all of Emma's birthday presents.

We continue to do peritoneal dialysis every night at home.  It is going well, and Piper is adapting well to the process.  We still struggle with eating and getting all of her medicines in her.  She doesn't like most of them.  Also, her blood pressure is still very high without medication.  We are trying to wean her off of the Minoxidil (bp med) because it encourages hair growth.  Hair growth is good for a recovering cancer patient....  unless you're a baby girl and your growing sideburns.  ;-(  So, we continue to pray that God will help make things easier for Piper.  She is such a fighter, and we are so proud of her!

Tuesday, September 20, 2011

September Update

Things have been going well for Piper.  Her latest ultrasound confirmed that all cancer is gone!  We are so grateful! 

We have been doing dialysis at home every night, and it has been going well.  She will have a minor surgery in a few weeks to have the hemo-dialysis catheter removed.  We are very excited to have that out!  She has been more energetic lately, and she actually wants to get on the floor and play!  She is still struggling with eating, but we are getting enough in her to keep her off of tube feeding.

She is even sleeping better at night.  Praise the Lord!!!!!!