Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Friday, March 4, 2011

March 2, 2011

Piper celebrated her first birthday. She had her 12 month ultrasound today. Unfortunately they discovered the wilms tumor. There are actually tumors on both of her kidneys. She has been admitted to Duke. Today (3/3), she has had a CT scan and an ekg. She will have surgery this afternoon to place a port in her chest. The port will be used to administer the chemo.  We are scheduled to start chemo tomorrow. We'll have a few rounds of chemo. Then we will have the surgery to remove as much of the tumors as possible.  She is doing well considering all she has been through. The people at Duke are doing a great job. They think she will be released tomorrow if all goes well. I'll post more when we know more.

5 comments:

  1. Sad to hear this Melissa. Best wishes to you and Piper from everyone at Aniridia Network UK. We feature your blog on our Facebook page.

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  2. Hello Melissa. My name is Kelly Trout. My daughter Caroline went through treatment for Wilms tumor 27 years ago. She is 29 years old now. The diagnosis of WT is devastating, and the surgery and chemo are tough to go through. But Duke is a terrific place, Wilms tumor can be cured, and our kids are often stronger than we are! I am also an RN, and health consultant for the International WAGR Syndrome Association (www.wagr.org). So if I can help in any way, please let me know. Our prayers are with Piper and your family.
    Hang in there,
    Kelly

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  3. Melissa,

    My name is Janelle Collins, and my daughter, Elli, is 2 1/2 and has sporadic aniridia. I want you to know that Piper and your whole family will be in my prayers as you fight this battle with Wilms.

    Janelle

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  4. Hi, Melissa~ My name is Tammie and my daughter Evie has WAGR/11p Deletion Syndrome and aniridia, and is a Wilms survivor. She was diagnosed at 15 mos. old. We'll be praying for you and the family!

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  5. Hi Melissa,

    My name is Helen Mopsick and my 3 year old son, Colton, has aniridia. I'm so sorry to hear about Piper's diagnosis. Please know that you, your family, and Piper will be in our prayers.

    Helen

    ReplyDelete