Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Sunday, March 20, 2011

So Far So Good ...

So far, Piper is handling her treatment well.  We go to clinic each Friday for chemo.  Piper hasn't had any major side effects yet.  She has not lost her hair yet, not that she has much to lose.  She has to take medication for high blood pressure each day.  Apparently, high blood pressure is something that is common with patients with wilms tumor. 

She is adapting to her new room well.  We had to hang room darkening curtains in her room to block the outside light.  Our new neighborhood is a lot brighter at night!  We are struggling with transitioning her to table foods.  She doesn't seem to want to eat anything with texture.  We have been struggling with this for a while now.  She will eat pureed baby food, but nothing with 'chunks'.  We met with a nutritionist last Friday.  We were advised to have her start drinking pediasure each day.  ... we were told not to stress over the table food issue now...  just to get through the treatments first. 

She is doing well overall, though.  She continues to be a very happy little baby girl!  We are truly blessed, and we continue to pray for healing and happiness for Piper!

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