Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Tuesday, May 24, 2011

The First Step ...

Last Friday, Piper had an appointment at Duke for labs and chemotherapy.  Her labs showed her platelet count at 16.  A healthy platelet level is 150+.  This meant that she needed a platelet transfusion.  So, she had chemo, and she got some new platelets!  They wanted us to go back on Monday because her other counts seemed to be dropping.  We went back on Monday morning.  Her counts were down, and she needed a blood transfusion.  The transfusion took over 3 hours.  It was a very long day!  She is feeling good, though.  She has lots of energy, and she is laughing and playing a lot!

Today, we did not have any Dr. appointments.  Today was a very important day, though!  Piper took her first 'solo' step!  It was only one step, and she fell ...  but, she tried!  She took 2 steps and fell this afternoon.  Hopefully soon she will be walking!!!!  I know that she won't have good balance until she is done with chemo, but it is good to see her making progress.

We have an appointment scheduled for this Friday.  This is her last chemotherapy session before surgery!  This will be her 12th week of chemo!  She is a tough little girl, and she has been amazing through it all.  She has a CT scheduled for next Tuesday.  Next week we should know when the surgery will be scheduled.  We expect to have another 6 weeks of chemo after surgery, but they can't tell us for sure until the surgery is complete.

Her ANC is below 500 now, so we are praying that she doesn't have any fevers.  If she gets a fever, we will be admitted to the hospital.  Brian's birthday is Sunday, and we would really like to all be at home to celebrate "Daddy's" birthday!  We praise God for bringing Piper through this, and for providing her with such an amazing spirit!  We know that we still have a long journey ahead, but we also know that we are not alone. We thank you for your continued support and prayers!