Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Wednesday, June 22, 2011

It Was A Great Tuesday

To God be the glory!  Our baby girl is starting to feel better!  She has still had her share of issues, but she is showing improvement every day; both physically and mentally!

First, the rough stuff ...  Her blood pressure continues to be an issue.  The Dr.'s are trying a variety of medicines to help get it under control.  We need it to be lower and stable.  She has been throwing up each morning.  We assume that is due to issues with her eating/digestion.  She will remain on the feeding tube for a while longer.  They want her to sleep in her car seat inside of the crib.  That should be interesting, but it will keep her at a 45 degree angle.  They are also giving her a regular schedule of Zofran.  Zofran is the wonder drug for chemo patients.  It helps with nausea.  She is still not peeing enough.  We need a big increase in her urine output.  She will have to keep having dialysis treatments every other day until her kidney fully recovers.  We need this to be soon!  Please pray for these issues to be resolved quickly for her.  She is getting very frustrated with the whole process.

Now, on to the better stuff ...  :-)
In the past 24 hours Piper has been working hard to learn how to sit up again by herself.  She wants so much to just get down on the floor and play!  She did sit up in her crib and play a few times yesterday.  She had so much fun playing last night!  She was smiling and laughing so hard that her little self was bouncing in the bed!  We have also seen some improvement in her kidney scans and function over the past week.  We need a lot more pee, though!

Today we thank God for her smile and her laugh, all of the people taking care of her, the healing that He is continuing to do in her, and for our friends and family!