Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

Search This Blog

Wednesday, July 6, 2011

Baby Needs A Blackberry

Piper has so many procedures and tests that I think she needs her own blackberry to keep track of her busy schedule!!!  Today alone she did the following : replace NG tube, change dressing for NG tube, blood drawn for labs (twice), renal scan, replace port needle, change dressing on port site, speech therapy, ultrasound, vitals checked every 4 hours, placed on heart monitor for the night, and she ate real food for breakfast and lunch!!!!  That's not including the parade of doctors and nurses that came by to look at her and listen to her with the stethoscope.  She is quite tired right now, and so is Mommy.  Tomorrow she will have dialysis.  :-(  Please pray that she rests well, and that tomorrow goes well.