Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Sunday, July 31, 2011

Busy, but Good!

We have been super busy recently.  Piper had dialysis on Monday, Wednesday and Friday last week.  She also had her eye appointment on Tuesday.  On Thursday, we had to go to clinic to have her dressing changed.  We also had a nice visit to the ER on Wednesday night for another dressing change.  We had such a busy and crazy week that the doctors gave us the whole weekend off!!!!

Dialysis has been going well.  She had to have a blood transfusion again on Friday.  Her counts have been low lately.  We have been having issues with the peritoneal dialysis catheter this week.  The site keeps bleeding.  She had to have the dressing changed on it several times this week.  I think it is under control now, though.  We had some good news this Tuesday at the eye doctor.  Piper still does not need to have eye glasses yet.  Her larger cataract has not changed in the past few months so we don't have to discuss surgery for that yet!  We were told (once again) that the next appointment in November she will have to be fitted for eyeglasses.  We'll see what happens in November.

We had a great time together this weekend.  We did some shopping, we played, we did some work around the house, and we finally returned to church!  It was so nice to see some of our great friends that we haven't seen in a very long time!  I really miss going to church each week.  Piper couldn't go to nursery for obvious reasons, so she stayed with us for the service.  She really enjoyed the worship, and she was singing the whole time. 

This week she has dialysis on Monday, Wednesday, Friday, and possibly Saturday.  I started training last Friday for administering the peritoneal dialysis at home.  I have to attend training sessions on M, W and F of this week as well.  If all goes well by Friday, they will give us the whole weekend off again!  We also have both Tuesday and Thursday off this week because she isn't due for chemo again until the following week.  August 9th is Piper's last scheduled chemotherapy!!!!  We have been looking forward to this day for a long time, and we praise the Lord that He has brought Piper through this part of her journey. We are so grateful for the continued prayers and support of our friends and family.