Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Wednesday, April 20, 2011

CT Results, Fevers, and Upset Tummy...

We had a fairly good weekend.  We survived the tornadoes.  We spent some time together at home as a family!  ... and we did not go anywhere near a doctor's office or hospital!!!

On Tuesday, we had our clinic appointment at Duke.  The Dr.'s want Piper to have another 6 weeks of chemo before considering surgery again.  They said that her body seemed to respond very well to the chemo.  The tumors on her left kidney shrunk by 50%.  The tumor on her right kidney, however, was too large to begin with.  They will be removing her right kidney and saving as much of the left kidney as possible.  They think she will really benefit from the additional chemo.  So, we had our 7th week of chemo..........  We went home and the girls took a late afternoon nap.  When Piper woke up, she was very hot!  I took her temp several times, and it reached 101.8.  For her, that is high!  So, we made "the call".  We were told they wanted us to come back to the ER.  So, Piper and I drove back to Durham again!

They are still not able to tell us why she keeps getting these fevers.  They are not able to find any infections, but they keep giving her antibiotics.  We were finally released to come home last night/this morning at 1am.  She is also not feeling well.  She is moving a lot slower than she used to, and she has been vomiting.  We continue to give her the nausea medicine and lots of water/liquids.

Her big sister, Emma (2), has been very loving, though.  When Piper got sick this morning, Emma went over and patted her on the back saying "It's okay sister".  She really loves her little sister.  I think she understands that her little sister is sick, and she really wants to help.

Please pray that Piper's stomach starts feeling better and that she stops getting these unexplained fevers.  Thank you for your continued prayer for Piper.  It means a lot to our family.