Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

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Monday, May 2, 2011

Another Day On The 5th Floor

Today was a good day. Piper seemed happy and playful most of the day. Her ANC is down from yesterday, which is not a good thing. Her ANC needs to show that is absolutely on the rise before they will let us go home. She also can't have any fevers or any signs of infection. So, for now, we have no idea how long we will be here this time.

She had a rash appear around her port site today. It appears that there might be a bit of infection there, so she is getting another type of antibiotics. I never knew that so many different types of antibiotics could be required for one person. She has the liquid antibiotic that she gets every week at home. She gets a dose of an antibiotic every time we go to the ER. She gets antibiotics the whole time we are inpatient, but all of these antibiotics must not cover everything.... so we have another new antibiotic for the rash.   ... who knew?!?

She had a clinic appointment scheduled for tomorrow for chemo. She will just get that inpatient. She is only getting Vincristine, so her counts don't have to be up to get it. Hopefully we will get some rest tonight, and we'll have better news in the morning.

Thanks for all of the prayers and support.