Please Note

I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.

Search This Blog

Wednesday, July 13, 2011

Fun Day Today!

Hyundai Hope on Wheels

Piper had a great day today!  She participated in an event at Duke called Hyundai Hope on Wheels.  Hyundai donates a percentage from each car sold to pediatric cancer research.  They brought a Hyundai to the hospital, and they invited the pediatric cancer patients to put their painted handprints on it.  Piper placed her red handprint on the front passenger door under the right side of the door logo.  Click on the link above to see photos.  There is a picture of Piper having her hand painted red.  You can't see her face, but you can see her hand, her leg, and my arm.  There is also a picture of us together.  She was holding up her hand after she left her handprint.  It was a lot of fun.  We even got a gift for participating!  and Duke got a "big" check! 

So, now for the news about Piper.  She is scheduled for surgery on Friday.  She will have a catheter placed in her abdomen for administering peritoneal dialysis.  She will have to continue regular hemo dialysis until the new catheter is fully healed and ready for use.  Once the surgery is complete, and we have all of the logistics worked out so we can have outpatient dialysis...  We should be able to go home! 

Some other good news...  Piper's blood counts are looking good.  Her blood pressures are looking good.  She is on all oral medicines at this time.  She is not attached to any machines, and she is eating!!!!!!!  She had over 600 calories and 15 oz of fluids today!  That is a lot for Piper!  Her energy level is amazing.  She wants to walk around the halls all day long!  If you saw her now, you would not think that she is a sick kid.  She looks wonderful!

Today we praise God for all of the healing that He has done and is doing in Piper and all of her friends here at Duke, for blessing Piper with such an unshakable spirit, for the generosity of organizations like Hyundai that want to help the children, and for the love, patience, kindness, support and continuous prayers from our friends and family.