Please Note
I am not a medical professional. I do not have any medical training. I am the mother of a little girl who has been diagnosed with Aniridia, Wilms Tumor, and Kidney Failure. I am writing about my experiences. I am not always going to be accurate with details, but I try to be as accurate as possible. Please do not use this information to diagnose or treat yourself or anyone else. Please consult with a trained medical professional for any treatment or diagnosis.
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Tuesday, October 2, 2012
UNC's Response
We
finally received the call from UNC. They have agreed to list her as
"inactive" on the transplant waiting list. They will not approve her
for surgery at this time. They want to re-evaluate in 3 months...
They're stalling... This is not the news we wanted. I have a feeling
that she isn't supposed to be at UNC. Please God tell us where to take
her.